Friday, January 7th

We were reunited with Dr. Tang in Neurology Friday afternoon. The best part about the the meeting was he remembered Taylor and I. That is the difference between the Mayo Clinic and doctors elsewhere. People here spend time reviewing you history before they walk in the door. When Dr. Tang came in, it was like we had never left. He knew exactly who Taylor was and what was going on. We reviewed any changes and a second Neurologist came in. Everyone agreed that the course of medication that the GI doctor recommend, Imuran, is the best possible choice for treatment.

When we left Neurology, we had a follow up appointment with the GI specialists. All of Taylor's tests came back normal including his scope procedure. We asked several questions and went over the effects of Imuran again.

After speaking with all the doctors I know we are on the right path. It will take several months for this medication to kick in, but when it does, it will help. Imuran is a powerful medication and there will be side effects. Taylor will have to have monthly blood tests to watch for developing problems.

The prayers are helping! Thank you!

Thursday, January 6th

We started our first day early with Taylor's appointment at 7:15 am. After meeting with the GI doctors and discussing the options for treatment, we spent the rest of the day in testing and a procedure. The last time Taylor ate was at 5 pm Wednesday. Taylor had to fast for testing on Thursday. It was a full 24 hours before his next meal. I had not eaten much either, so our dinner at Victoria's was delicious! I love Italian food!

We ended the day with full tummies watching Gray's Anatomy with Taylor's parents. It was a long day. We all were exhausted and glad to be relaxing. Friday brings at least two more doctor appointments, Neurology and GI. The appointment with Neurology most likely will bring more testing and more appointments.

Continuing positivity and prayers.

Headed back to Mayo 2011

With the beginning of a new year, we are headed back to the Mayo Clinic. When most people are traveling south to escape the frigged temperatures, we are headed north for answers. This time, I am packing every glove, every long sock, every scarf and every coat I can find in our house. I rather look like a fool and be warm than freeze. Needless to say, I was not prepared last time.

Taylor and I have decided to begin the year with a new positive outlook. No this is not a New Year's resolution. I find that New Year's resolutions are usually not kept. This is a state of mind. Positivity=Actuality. If we believe it, it can happen.

We seem to be at a standstill. Taylor hasn't had any significant improvement over the past year. He has gotten worse and recovered several times. We started a Gluten Free diet by choice, and that has seemed to help his stomach symptoms. But the beastly Crohn's Disease is still flaring. Headaches still persist, but with some assistance from Topamax, the everyday headache has dulled.

So as we head to the Mayo Clinic this week, we pray for guidance and clarity for the doctors in hopes that they will guide us down the right path for healing.